Our Mission

K.I.D.S. IQ Project is an international non-profit foundation focused on the advancement of drug treatments for reversible Intellectual Disability (ID) disorders, specifically those arising from a gene deletion or mutation. Our initial focus is on Kleefstra syndrome (KS) and related ID disorders that have a potentially synergistic approach to drug development. Learn more

Highlighted News

  • 2018 Kleefstra Syndrome Conference

    Over 200 people joined together to learn about the latest science surrounding Kleefstra Syndrome, including updates on existing drug treatment research as well as high-potential projects for the future. The weekend also included presentations on how to build an effective healthcare team for your KS family member and the hidden relationship between genetic screens and medication. The conference provided families with a unique opportunity to come together and share their experiences through family discussion periods and social events like the KS Walk & Roll – a group awareness walk.

    Presentations:

    • Scientific Advisory Board Update – Research Strategy and Future by Dr. Harvey Lodish
    • Kleefstra Syndrome Update by Dr. Kleefstra (PDF)
    • K.I.D.S. IQ Project Research Update from Radboud University Medical Centre:  Dr. Hans van Bokhoven (PDF) and Dr. Nael Nadif Kasri (PDF)
    • K.I.D.S. IQ Project Research Update – Boston Children’s Hospital (PDF)
    • Family Topic Presentation – Pharmacogenetics by Dr. Brian van Ness (PDF)
    • Family Topic Presentation – Doctors and Therapies by Neha Verma (PDF)

  • January 30, 2018 (Past Webinar): Intro to Applied Behaviour Analysis (ABA) Therapy

    ABA is a therapeutic approach that uses the principles of learning to teach important social behaviours and improve the overall quality of life for your child. Learn how ABA therapy can have great results for children living with an Intellectual Disability syndrome, such as Kleefstra syndrome. Download the updated slides (PDF).

  • December 22, 2017 (Past Webinar): Pharmacogenetics – Using Genetics To Improve Drug Effectiveness

    Did you know that the same drug can have a different effect on different people based on their genetic profile? Watch our webinar as we discuss how this knowledge can help us improve drug effectiveness – especially for those with Kleefstra syndrome. Download the updated slides (PDF).

  • November 10, 2017 (Past Webinar): Kleefstra Syndrome and Mental Health

    Learn about the relationship between mental health and Kleefstra syndrome, including the issue of regression. Download the slides (PDF).

  • September 20, 2017 (Past Webinar): Drug Repurposing – How A Drug Approved For One Disease Can Be Effectively Used To Treat Another

    Learn about the opportunity to take drugs already approved for one illness and repurpose them to a new target illness. In this webinar, we discussed why this is a viable strategy for Kleefstra Syndrome in addition to why additional testing is required. Download the slides (PDF).